It’s a horrible feeling taking my prescribed medication before bed knowing that it may kill me in the night but I’m not allowed to not take it

69785082_2191392084320147_3509177478436356096_nI apologise in advance for the downhearted post. It’s a horrible feeling taking my prescribed medication before bed knowing that it may kill me in the night but I’m not allowed to not take it. My bs is 6.6 or 118.8, I now have to take my metformin and inject my humulin, by about 4.30/5am I’ll be hypo. Last night it was 2.6 or 46.6. I ‘d 3 hypos yesterday but my doctor wants me to stay on the same dose. I feel so fed up, I feel like just not taking the medication all together. I’m putting on so much weight because I’m having to eat glucose tablets and drink OJ every night. 3/4 times a night isn’t uncommon lately.

Leta Barton Stewart 🙀 I am not a physician, but have been T1D 49 years. Sounds like an adjustment us definitely needed. Is there an endocrinologist you could change to?

Leta Barton Stewart Gillian McPherson I get it. I adjust my doses myself successfully, but not sure if you are comfortable with that. The lows in the middle of the night are an issue. If it were me, I would reduce humulin dose

Gillian McPherson Leta Barton Stewart It’s been about 8 weeks or so since I was diagnosed, I’m still struggling to cope with it, I’d be too scared to adjust my medication level.

Gillian McPherson Leta Barton Stewart I’ve had very little help from diabetic professionals only my gp and community nurses are advising me. I was so relieved to find this group, I’ve learned so many tips and tricks for dealing with my condition.

Leta Barton Stewart Oh wow, I live in Charlotte, North Carolina in the US. I am so sorry that getting good help with this is so hard. Much of my heritage is from that part of the world! Had fabulous Shetland Sheep dogs a # of years. They were so awesome!

Tiffany Smith Have you let the endo office know that you are having lows? Sometimes you can get an earlier appointment when they become aware you need some help. Or they might also let you know how to prepare (record keep) for when you’re seen and can be more helpful faster.

Vanessa Martinez I too struggle with certain supports. I live in a rural area where specialists are very few and far between. It takes months to get into an endo. I haven’t tried for myself but I work in healthcare so I know it’s hard. Thank God for my diabetes educator because she helps me figure out how to adjust my insulin.

Sonya Muriel Villalobos Wood Why can you not adjust your meds?

If my doctor refused to work with me he or she would see my backside as I left. Personally, nobody gets to dictate what goes into my body. I talk to my doctor. Discuss my concerns. She gives her advice and recommendations. I choose to take the prescription or not as I feel is right. My body, my choice.

Gillian McPherson Sonya Muriel Villalobos Woodunfortunately the next doctor is 40 miles away from where I live. It has been regularly decreasing since I came out of hospital, I was on 34 twice a day, now I’m on 30 am and 24 pm.

Sonya Muriel Villalobos Wood Then I would travel. That is life in rural areas unfortunately. I do understand. Nearest pediatric neurologist is 1 hour 15 minutes from us. My son had a seizure disorder so this meant travel. My niece has chronic illnesses so severe it makes diabetes look like a walk in the park. A simple fall can kill her. Her doctors are also about an hour away. Better than the 3 hours they used to be though.

Terry Cottom I have the same problem they want me to not change my inslin but my daughter found me unresponsive last week and the paramedics had to be called very scarey

Terry Cottom Gillian McPherson sorry didn’t mean to scare you if your sugar is running low before bed eat you some peanut butter and crackers and some juice and check it again after that

Gillian McPherson Terry Cottom I do, if it’s below 5 I have a snack but last night it was 7.6 by 4.30 am it was 2.6.

Allison Fibish Some questions first: are you type 1 or 2? How long have you been on these? Have you made adjustments recently? Do you know how to make adjustments on your own? Why are you taking metformin at night instead of morning?

Gillian McPherson Allison Fibish I’m type 1, I was diagnosed about 8 weeks ago. The humulin evening injection level has been dropped every week for the last few weeks. I don’t have a clue what I’m doing other that doing what my doctor tells me. I’m on metformin twice a day.

Denise DeFever Bordato Hope you have a protein and low carb snack before bed…I have a few crackers with a cheese slice between or a cheese stick…it has really helped me from having a low during the night. I also keep a couple of cups of sugar free applesauce and spoons near by nightstand…for thos night time lows…I had a bad low a few weeks ago…my hubby wants me to keep some packets of honey there now also…he says it would be easier and cheaper to pour/spoon into my mouth if I am really out of it…

Leta Barton Stewart Gillian McPherson one thing that I just realized is that you are also on Metformin. Where I live that is only given to type 2 Diabetics

Gillian McPherson Leta Barton Stewart the consultant said I needed it as well as the humulin, I have a fast acting insulin too but I’ve not had to use it yet.

Allison Fibish Keep in mind, that none of us have all your medical info, and therefore any suggestions we make need to be cleared with your Endocrinologist. If you haven’t seen an Endocrinologist yet, you should be on the phone getting an emergency appointment with one. If you are T1 diagnosed 8 weeks ago, with no history of T2 or hyperglycemia, you should not be taking Metformin. There are many things to learn about your diabetes, and other diabetes, that a GP is unlikely to have knowledge of. Be prepared for a low at all times, keeping glucose and snacks near you. Do not change or adjust your medicine until and unless an endocrinologist states.

Andrea Kirby I was diagnosed about 7 months ago and my endo has given me the ok to adjust my doses of insulin… I am type 1 but I would say adjust in small Increments if you are comfortable with it

Tammy Burgemeister 6.6 warrants insulin and met? Wow I’m 6.5 and my doc said to cut carbs and exercise and I shouldn’t have to go on any meds. I would make the 40 min drive to that other doc if you can. This sounds super scary and doesn’t sound right at all. What is your bs before you inject insulin?

Have you googled to see if there are docs you can skype or even have a phone appt? A lot of docs do this now.

Gillian McPherson Tammy Burgemeister when I was admitted to hospital 8 weeks or so ago it was 25.2 or 453.6 it’s come down so much, now maybe too much.

we have the nhs over here in Scotland, it’s take it or leave it really, there’s no way I could go private. I just have to wait my turn to see the specialists I’ve been referred to.

Diane Pezza You are right, you should not have to eat up to your insulin dose. You will gain a lot of weight. Doctors like to see a recorded pattern of lows so keeping a log with all of your BG values is important. Sometimes a high A1c will make the doctor continue to force you to take the prescribed dose. You will need to prove that you are having lows. If dose is not changed and you are still having lows you will need another doctor. Ugh

Shelley Kummer Stevens Diane Pezza another Doctor, or work on reading and learning as much as you can and adjust your own dosing. This is what should eventually be done anyway.

Diane Pezza Shelley Kummer Stevens yes learning how to self adjust using basal/ bolus carb insulin ratio with correction dosing is ultimate goal. Agree totally.

Michele Young When I would go to bed at 130 at midnight and wake up at 6:30 am at 55 I begged the dr to change my prescription. I was taken from 21 units to 10 and kept my metaforman at 500 mg twice a day. My A1c is 5.5, just told on Tuesday.
I’d go and find a new dr. You know your body better than anyone.

Cele Blackburn If your doctor won’t work with you, get a different one. It is not safe to be that low overnight. Find someone to help you make those adjustments. See if there is a certified diabetes educator you can work with. Mine makes adjustments for my insulin pump all the time.

Brad Hepfer This is way too dangerous!!! Diabetics do die in their sleep from too low a blood sugar. I’ve had three bad lows in thirty years. I also believe many diabetics are on the wrong insulin regimen!!! I make all my own adjustments, my doctor trusts me! By the way, like all diabetics, I’m not perfect! Best of luck to you!

Kato Bland Get a decent doctor who knows what he is talking about. There is no textbook diabetes. Ask your diabetic educator. Advocate for yourself if no one else does.

Laurie Fazekas I don’t know how long you have had diabetes, but you have to be your own advocate. Learn all you can about the affects and duration of the meds you are taking. Always question a doctor of why they suggest different treatments. It does seem that an adjustment and help from a qualified doctor is needed, if you are having that many lows. Keep on pushing on, we are all going through the ups and downs of this disease with you 

Lisa Adele Pfeffer Im T2 and when first diagnosed I was on insulin. As time went on, my readings improved and I spoke with dr about a couple of lows. She gave a range and I started making my decisions on how much I needed. It is scary, but you might want to see if you can (via skype or emal) show your readings to your dr and get some diff amounts.

Chantal Charbonneau Cut back on the insulin dosage so you don’t keep droping to dangerous levels!!! You know your own body. Then find a good doctor. This doctor sounds scary.Take charge of it yourself. If you bounce a wee bit high, that is safer than going down to those extremely frightening lows.

Josephine Licata Look for a new doctor. If you’re type 1, metformin won’t help unless you’re insulin resistant as well as insulin dependent. But it sounds like you’re sensitive to insulin like I am. Too much can cause too many lows which isn’t good.

Did this doctor give you a set amount of carbs to eat and a set dose of insulin? Carb-counting? Are you on just a long acting insulin?

In the beginning, I was told to eat 45 grams of carbs for each meal with 10 or 15 units of long acting insulin in the morning and Glipizide. Then I was taking metformin in place of Glipizide but it didn’t work. I just got sick from it. Now I’m on both long and short acting insulin and given an insulin:carb ratio. I’m at the point now where I can make adjustments myself (5 years in).

You should see a diabetic educator too if they have them where you live.

Jerry Doolittle If your bg is normal and your taking insulin and meds to lower it, the prob is obvious. Consult with your doc and get this straightend out.

Sande Bryson Orejuela I would cut back but that’s me been a Diabetic for 40 years so I adjust accordingly but I do let my dr know but you know your body and it’s reaction your dr doesn’t I would call and say he or she needs to make adjustments that’s way to many lows and way to low

Cristi Rice I’d rather be a bit high than low.46 is way to low! The others are right you are in control of you. I have started a diary of my blood sugars. My feelings… my dosage. It helps.
And YES find another Dr.

Nikki Rivera Ok then prior to bed have 4 ozs of juice with half a chicken or turkey sandwich it will carry you thru the night. I know because i suffer from the midnight i eat and juice to avoid the lows

My successful Diabetes Treatment Story

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